Patient Advocacy Groups


Angiosarcoma Awareness Inc.

Associazione Paola per i TumoriáMuscoloscheletrici. Onlus

Bone Cancer Research Trust

Desmoid Tumor Research Foundation

The Electronic Sarcoma Update Newsletter

Ensemble contre le GIST

GIST Cancer Awareness Foundation

The GIST Cancer Research Fund

GIST Support International

iSPAN – International Sarcoma Patient Advocate Network

Liddy Shriver Sarcoma Initiative

Leiomyosarcoma Direct Research Foundation (aka LMSarcoma Direct Research)

Life Raft Group

Lymphangiomatosis and Gorham’s Disease Alliance

MHE Research Foundation

Northwest Sarcoma Foundation

Rare Bone Disease Patient Network

Sarcoma Alliance

Sarcoma Foundation of America

Sarcoma NL

Sarcoma UK

SOS Desmo´de

Synovial Sarcoma Research Foundation